I received so many comments in response to last weeks’ blog that I figured they warranted their own blog! It seems many readers could relate to the concept of rest not being restful whether because of chronic illness, pain, fatigue or sleep problems. It’s good to know we are not alone. Here follows the helpful […]
Surviving Chronic Illness
When Rest is Not Restful
There’s no rest for the wicked—or the chronically ill. When friends tell me, ‘Take care,’ or ‘Look after yourself,’ I seldom know how to respond. It’s hard to take care of myself when I live with chronic illness. Things can flare without warning. Pain can knock me sideways. Sometimes I have to say no to […]
Coping or Numbing?
‘You are coping so well,’ remarked my doctor. ‘Every time I see you, you’re always so positive and upbeat.’ ‘Maybe I should come in on a bad day!’ I shot back, laughing. But his words made me think. What does ‘coping’ mean? How do people interpret my happy front or humour as coping—or do they […]
When Surgery is a Blessing
My arm is in a sling. I can’t use it. I can’t drive anywhere. I can’t wash the dishes. Cutting up food is out. I can only eat things that can be prepared and consumed single-handedly. I can’t even shave properly. And don’t ask me about showering and toileting. I’ve been typing all week with […]
His Disfigurements
‘We looked down on him, thought he was scum. But the fact is, it was our pains he carried— our disfigurements, all the things wrong with us. We thought he brought it on himself, that God was punishing him for his own failures. But it was our sins that did that to him, that ripped and tore and crushed […]
Roller-Skate While You Can!
‘I have decided,’ announced my psychologist/coach friend, Krystyna Kidson, ‘to make the most of things while I have them. To that end, I’m going to learn to roller-skate!’* We were discussing life with chronic illness and, in particular, I was lamenting the loss of predictability and control. ‘How can I go on,’ I moaned, ‘when […]
Not Alone and Other Stories
I recently read the Stories of Life anthology, Bones and Blue Eyes,* mostly because (shameless self-plug alert) I had two stories published in it, but also because I was genuinely interested in other people’s stories of everyday faith. The book was a blessing. There was a vast mixture of stories short and long, telling tales when […]
What Are Your Hopes for 2023?
I’m not setting goals and plans for this year. I’m not making New Year’s Resolutions anymore. It’s not that I don’t believe in them, and if they help you, knock yourself out. But one thing chronic illness has taught me is that my goals and plans are often laughably unrealistic. These days, when I set […]
The Need for Silent Night
Everyone is talking about self-care this Christmas. For each of us, self-care will look different, depending on our personality, holiday plans and personal circumstances. Personally, I am living with childlessness and chronic illness. (And a cat. So it is not all bad.) Which begs the question: how does a person with grief and sickness celebrate […]
Why Diagnosis Was a Relief For Me—and When Getting Better is Hard
Being diagnosed with a lifelong condition is a source of grief for many people. But diagnosis was actually a relief for me—and my grief sometimes gets worse when I get better, not just when I get sicker. I am unfortunate enough to be living with an absolute monster of an autoimmune disease commonly known as […]