‘You’re too young to have arthritis!’ the doctor remarked. I took a breath before responding. Age amongst the chronically ill can be a sensitive topic, and many young people with chronic pain and disease experience minimising and dismissal from doctors on account of their youth. This, naturally, is not OK—yet many doctors still comment on […]
acceptance
Myths of Singledom
I met my husband later in life: I was twenty-nine. OK, that may not sound like a ‘late’ marriage, but in my church circles everyone was married by the ripe old age of twenty-one. At twenty-nine, I was considered practically retired. Or a leper. During those years of singledom, I encountered some interesting myths and […]
Coping or Numbing?
‘You are coping so well,’ remarked my doctor. ‘Every time I see you, you’re always so positive and upbeat.’ ‘Maybe I should come in on a bad day!’ I shot back, laughing. But his words made me think. What does ‘coping’ mean? How do people interpret my happy front or humour as coping—or do they […]
Why Diagnosis Was a Relief For Me—and When Getting Better is Hard
Being diagnosed with a lifelong condition is a source of grief for many people. But diagnosis was actually a relief for me—and my grief sometimes gets worse when I get better, not just when I get sicker. I am unfortunate enough to be living with an absolute monster of an autoimmune disease commonly known as […]