Three years ago I became disabled by illness. I don’t know whether it was lupus or not; the illness was never diagnosed. But it was a doozy of a flare-up and I was off work for about six months. During that time, I was virtually house-bound, going out only for medical appointments. I had to […]
flare
When Rest is Not Restful
There’s no rest for the wicked—or the chronically ill. When friends tell me, ‘Take care,’ or ‘Look after yourself,’ I seldom know how to respond. It’s hard to take care of myself when I live with chronic illness. Things can flare without warning. Pain can knock me sideways. Sometimes I have to say no to […]
Stuck in the Middle
If you want a story with a happy ending—or indeed, any kind of ending—you’d better stop reading now. This story, like an unfinished symphony, is incomplete. I am still living this story; I do not know how it ends. All I know is I am currently stuck in the middle of a seemingly endless stretch […]