A weird thing happened today: I didn’t push myself. This may not seem like a big deal to you, but trust me, as a recovering perfectionist, and as a person living with chronic illness, self-kindness is kinda miraculous. I have been accustomed to pushing myself like a work horse for a long time. Probably my […]
flare
Why Living with Lupus is Like a Scavenger Hunt—Part 2
Finding my Tribe It’s not easy to find support for a rare disease like lupus. But I have a few close friends with autoimmune conditions, and there is nothing quite like the breath of fresh air that is a friend who gets it. When they describe the sensation of brain fog and I say, ‘Oh, […]
Beyond Yoga
Last weekend I participated in a first-time Indie Author Book Festival in Adelaide. I had so much fun talking to customers and chatting to fellow authors all day—the conversations were nearly non-stop! Lots of people stopped by my table to talk about chronic illness. One thing that came up again and again was how often […]
Survival Skills: Grace in the Flames
Three years ago I became disabled by illness. I don’t know whether it was lupus or not; the illness was never diagnosed. But it was a doozy of a flare-up and I was off work for about six months. During that time, I was virtually house-bound, going out only for medical appointments. I had to […]
When Rest is Not Restful
There’s no rest for the wicked—or the chronically ill. When friends tell me, ‘Take care,’ or ‘Look after yourself,’ I seldom know how to respond. It’s hard to take care of myself when I live with chronic illness. Things can flare without warning. Pain can knock me sideways. Sometimes I have to say no to […]
Stuck in the Middle
If you want a story with a happy ending—or indeed, any kind of ending—you’d better stop reading now. This story, like an unfinished symphony, is incomplete. I am still living this story; I do not know how it ends. All I know is I am currently stuck in the middle of a seemingly endless stretch […]