Here we go again: Mother’s Day. This day invariably brings up grief for the children I wanted but never had. This grief, while uncomfortable and distressing, is a natural reaction to the loss of carefully planned hopes and dreams in my life. But how to grieve for these children? There are many ways to grieve […]
loss
Of Beauty and Rage
No one tells you about the rage. I wish someone had. I wish when I was first diagnosed with lupus that someone wise, a doctor, a counsellor, a pastor, had sat me down and said, ‘Now, Steph, lupus is going to change you as a person. You will come to resent your own skin and […]
Why Living with Lupus is Like a Scavenger Hunt—Part 2
Finding my Tribe It’s not easy to find support for a rare disease like lupus. But I have a few close friends with autoimmune conditions, and there is nothing quite like the breath of fresh air that is a friend who gets it. When they describe the sensation of brain fog and I say, ‘Oh, […]
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Survival Skills: Beauty and Breath
In the cool of the evening, I walk down the winding street toward the lake. The sunlight is fading gently into deep yellow and orange, the feathered clouds tinged with pink. There are a few joggers and dog walkers about, and we exchange a nod and a soft greeting. I pass gum trees, bottle brushes […]
Survival Skills: Grieving Spaces
I woke up with a niggle in my chest. It’s fine, I told myself. I took pain killers anyway. They I laid down to rest, but the pain became rapidly worse. So I got up, sat on the couch, and began praying that the pain killers would kick in really soon. Twenty minutes later I […]
Praying Through Infertility—Faith Renovations
‘When we start from the foundation of knowing we are loved, rather than demolishing our faith, times of pain can lead to faith renovations…’ – ‘A Firm Foundation’, Katherine Gantlett, from Praying Through Infertility. This quote for me sums up the entire message and tone of Praying Through Infertility, the 90-day devotional for men and women struggling […]
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Is Writing Cathartic?
‘How wonderful to express your pain through writing,’ people often enthuse. ‘It must be so cathartic!’ Yes—and no. On the one hand, I find it helpful to get my feelings onto paper or screen. Seeing things in black and white can give me clarity about my problems, not to mention perspective. Sometimes, when I write […]
Roller-Skate While You Can!
‘I have decided,’ announced my psychologist/coach friend, Krystyna Kidson, ‘to make the most of things while I have them. To that end, I’m going to learn to roller-skate!’* We were discussing life with chronic illness and, in particular, I was lamenting the loss of predictability and control. ‘How can I go on,’ I moaned, ‘when […]
Travelling Childlessly
One of my parenting dreams was taking my children travelling. I always enjoyed travelling as a kid: the early morning starts when it is still dark, the air is cold and crisp, and the first stirrings of insects prelude the dawn chorus; the long sleeps in the car, and rambunctious singing along to cassette tapes […]
Why Diagnosis Was a Relief For Me—and When Getting Better is Hard
Being diagnosed with a lifelong condition is a source of grief for many people. But diagnosis was actually a relief for me—and my grief sometimes gets worse when I get better, not just when I get sicker. I am unfortunate enough to be living with an absolute monster of an autoimmune disease commonly known as […]
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