I can’t believe it’s March already. 2026 is galloping ahead. For some of us, we already feel a bit behind the eight-ball. This has not been the year some of us were hoping for. In fact, for some of us, 2026 stinks. It’s going in a completely unwanted, violent, catastrophic direction. And we feel left […]
hope
Why Living with Lupus is Like a Scavenger Hunt—Part 2
Finding my Tribe It’s not easy to find support for a rare disease like lupus. But I have a few close friends with autoimmune conditions, and there is nothing quite like the breath of fresh air that is a friend who gets it. When they describe the sensation of brain fog and I say, ‘Oh, […]
Unsolicited Advice
In my solitary days of unwanted singledom, I received all sorts of unsolicited advice about how to unsingle myself. You know the sort: ‘You need to get out more.’ ‘Maybe you should be less picky.’ ‘Have you considered online dating?’ Some of that advice was pretty good, actually. Take the online dating, for instance. That’s […]
Happy Birthday, Book Baby!
‘I live with lupus,’ the lady said, ‘and when I saw in your author bio that you live with lupus too, I told myself I simply had to meet you!’ ‘I’m so thrilled to meet a fellow lupie!’ I laughed. Lupus is a rare condition and I often feel a bit alone and lost in […]
Myths of Singledom
I met my husband later in life: I was twenty-nine. OK, that may not sound like a ‘late’ marriage, but in my church circles everyone was married by the ripe old age of twenty-one. At twenty-nine, I was considered practically retired. Or a leper. During those years of singledom, I encountered some interesting myths and […]
Survival Skills: Grace in the Flames
Three years ago I became disabled by illness. I don’t know whether it was lupus or not; the illness was never diagnosed. But it was a doozy of a flare-up and I was off work for about six months. During that time, I was virtually house-bound, going out only for medical appointments. I had to […]
Survival Skills: Scriptures for Illness
‘Doubled up with pain, I call to God All the day long. No answer. Nothing. I keep at it all night, tossing and turning… I’m a bucket kicked over and spilled, Every joint in my body has been pulled apart. My heart is a blob Of melted wax in my gut. I’m dry as a […]
Survival Skills: Grieving Spaces
I woke up with a niggle in my chest. It’s fine, I told myself. I took pain killers anyway. They I laid down to rest, but the pain became rapidly worse. So I got up, sat on the couch, and began praying that the pain killers would kick in really soon. Twenty minutes later I […]
Survival Skills: Laugh
‘I don’t know how you cope with your chronic illness,’ remarked my doctor. ‘You seem to bear it so well.’ I laughed. ‘Maybe I should come in and show you what I’m like on a bad day!’ As good as my doctors are, laughter can be even better medicine. I have a pretty impressive repertoire […]
Books, Koorong, and Pain…And Thankfulness
As I write this final blog for the year, it seems fitting to give thanks for everything that has happened in 2024. Even though 2024 has possibly been one of the worst years of my life. Chronic illness ran away from me this year. I have been sick almost non stop. I won’t go into […]