Finding my Tribe It’s not easy to find support for a rare disease like lupus. But I have a few close friends with autoimmune conditions, and there is nothing quite like the breath of fresh air that is a friend who gets it. When they describe the sensation of brain fog and I say, ‘Oh, […]
‘I don’t know how you cope with your chronic illness,’ remarked my doctor. ‘You seem to bear it so well.’ I laughed. ‘Maybe I should come in and show you what I’m like on a bad day!’ As good as my doctors are, laughter can be even better medicine. I have a pretty impressive repertoire […]
‘You are coping so well,’ remarked my doctor. ‘Every time I see you, you’re always so positive and upbeat.’ ‘Maybe I should come in on a bad day!’ I shot back, laughing. But his words made me think. What does ‘coping’ mean? How do people interpret my happy front or humour as coping—or do they […]
I recently read Two Sisters and a Brain Tumour, a memoir by author friend Emily J. Maurits. Even though it was about a brain tumour, I enjoyed reading it—probably because it was about so much more than that. The author takes us on a journey through her relationship with her sister, with all the tension and […]