‘Why does God allow suffering?’ is a common catch-cry in our society. Christians and non-Christians alike struggle with the concept of a God who either doesn’t seem to care about our pain, or who cares but appears powerless to intervene. For a Christian who believes God is all-powerful as well as all-caring, it’s a conundrum. […]
lupus
Survival Skills: Find Your Illness Tribe
‘Find your tribe,’ they say. But how do you find your illness tribe—especially when your illness is rare? My particular brand of illness, known as lupus, apparently affects approximately 0.06% of the population and five million people worldwide.[i] So it’s not like I’m going to find many fellow ‘lupies’ at my workplace or local church. […]
Survival Skills: Get. A. Second. Opinion.
‘You have some blood markers for lupus,’ the professor said, ‘and you have some symptoms for lupus, but I don’t feel comfortable diagnosing you with lupus.’ I groaned internally. I was sitting in the specialist’s office, hoping to finally have some answers for the medical circus that lived in my body. I had been living […]
Survival Skills: Laugh
‘I don’t know how you cope with your chronic illness,’ remarked my doctor. ‘You seem to bear it so well.’ I laughed. ‘Maybe I should come in and show you what I’m like on a bad day!’ As good as my doctors are, laughter can be even better medicine. I have a pretty impressive repertoire […]
Am I Brave?
‘I don’t know how you cope with your illness,’ said my well-meaning friend. ‘You must be really brave!’ I flinched inwardly. I knew she meant it as a compliment, and I took it in the spirit in which it was given, but something in me reacted involuntarily. The notion of surviving chronic illness being reduced […]
How To Pray for Chronic Illness
I recently had a great experience of prayer. A group of friends came over and prayed for my illness. Guess what? They didn’t pray that I would be healed. They didn’t assume what I wanted. Instead, they listened while I articulated my prayer needs. Then, gently and sensitively, they prayed as the Holy Spirit led […]
Weird Childless Relief
After my recent surgery I experienced intense nausea and vomiting for a week. As the vomiting finally backed off, I remarked to a friend, ‘If morning sickness is anything like that, I’m glad I was never pregnant!’ I was slightly surprised at my own comment. Childlessness brings many unpleasant emotions with it: disappointment, anger, grief. […]
Why Diagnosis Was a Relief For Me—and When Getting Better is Hard
Being diagnosed with a lifelong condition is a source of grief for many people. But diagnosis was actually a relief for me—and my grief sometimes gets worse when I get better, not just when I get sicker. I am unfortunate enough to be living with an absolute monster of an autoimmune disease commonly known as […]
Stuck in the Middle
If you want a story with a happy ending—or indeed, any kind of ending—you’d better stop reading now. This story, like an unfinished symphony, is incomplete. I am still living this story; I do not know how it ends. All I know is I am currently stuck in the middle of a seemingly endless stretch […]
Radical Rest
We all dream of holidays. This photo was taken from a wonderful holiday of mine. We all fantasise about exotic escapes, island getaways, country retreats or just a quiet break at home. For those of us who holiday once a year, there is a distinct feeling of weary anticipation as the year nears its end. […]