‘You’re too young to have arthritis!’ the doctor remarked. I took a breath before responding. Age amongst the chronically ill can be a sensitive topic, and many young people with chronic pain and disease experience minimising and dismissal from doctors on account of their youth. This, naturally, is not OK—yet many doctors still comment on […]
lupus
Survival Skills: Grace in the Flames
Three years ago I became disabled by illness. I don’t know whether it was lupus or not; the illness was never diagnosed. But it was a doozy of a flare-up and I was off work for about six months. During that time, I was virtually house-bound, going out only for medical appointments. I had to […]
Survival Skills: It’s Not Fair!
There are times when I get super jealous of able-bodied people. There, I said it. As much as envy is not exactly a fruit of the Spirit, this try-hard Christian experiences jealousy on a semi-regular basis. I feel it watching other people climb stairs without a problem. I experience it when friends regale me with […]
Survival Skills: Scriptures for Illness
‘Doubled up with pain, I call to God All the day long. No answer. Nothing. I keep at it all night, tossing and turning… I’m a bucket kicked over and spilled, Every joint in my body has been pulled apart. My heart is a blob Of melted wax in my gut. I’m dry as a […]
Survival Skills: The God Who Allows Pain
‘Why does God allow suffering?’ is a common catch-cry in our society. Christians and non-Christians alike struggle with the concept of a God who either doesn’t seem to care about our pain, or who cares but appears powerless to intervene. For a Christian who believes God is all-powerful as well as all-caring, it’s a conundrum. […]
Survival Skills: Find Your Illness Tribe
‘Find your tribe,’ they say. But how do you find your illness tribe—especially when your illness is rare? My particular brand of illness, known as lupus, apparently affects approximately 0.06% of the population and five million people worldwide.[i] So it’s not like I’m going to find many fellow ‘lupies’ at my workplace or local church. […]
Survival Skills: Get. A. Second. Opinion.
‘You have some blood markers for lupus,’ the professor said, ‘and you have some symptoms for lupus, but I don’t feel comfortable diagnosing you with lupus.’ I groaned internally. I was sitting in the specialist’s office, hoping to finally have some answers for the medical circus that lived in my body. I had been living […]
Survival Skills: Laugh
‘I don’t know how you cope with your chronic illness,’ remarked my doctor. ‘You seem to bear it so well.’ I laughed. ‘Maybe I should come in and show you what I’m like on a bad day!’ As good as my doctors are, laughter can be even better medicine. I have a pretty impressive repertoire […]
Am I Brave?
‘I don’t know how you cope with your illness,’ said my well-meaning friend. ‘You must be really brave!’ I flinched inwardly. I knew she meant it as a compliment, and I took it in the spirit in which it was given, but something in me reacted involuntarily. The notion of surviving chronic illness being reduced […]
How To Pray for Chronic Illness
I recently had a great experience of prayer. A group of friends came over and prayed for my illness. Guess what? They didn’t pray that I would be healed. They didn’t assume what I wanted. Instead, they listened while I articulated my prayer needs. Then, gently and sensitively, they prayed as the Holy Spirit led […]